Living with Myositis

Adaptations and Devices

Being diagnosed with a chronic, rare disease can be very disorienting for both patients and those who care for them. Suddenly life looks very different, and adjustments must be made to accommodate new limitations. Many questions arise during this time, both practical and emotional. Coming to terms with this new landscape can take some time, but there are things you can do to facilitate your adjustment.

Arm yourself with information. This is one of the very best ways to start your journey with myositis. Asking questions of others—either health care providers or those who have the disease—is also very helpful.

We've curated links to some great sites where you can learn much more about the diseases, get helpful life hacks and useful product suggestions. Along the way we'll write up on our blog anything we've personally tried and share our experiences. The new 'normal' can still be a life well enjoyed.